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Search results for: rare disease

Can Real-World Evidence overcome uncertainty in Ra...

We examine how real-world evidence strategies help address uncertainties in rare disease treatments ...

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ISPOR Europe 2023: Are Acute Therapies And Curativ...

We've updated our 2019 analysis which compares the annual and lifetime treatment costs of the 10 mos...

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Government announces new action plan for rare dise...

Hope that new action plan and collaboration with the rare diseases community will progress positive ...

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Are acute therapies and curative drugs more afford...

We've prepared an analysis of the top 10 most expensive drugs in the US compared with Germany, in th...

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Developing a tender strategy for a rare disease

The company found themselves facing competitive tenders for the first time in this disease space - t...

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Germany – Is digitisation the gateway to better ...

Digitisation is thought to contribute significant improvements in knowledge generation in drug devel...

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EURORDIS release joint statement on patient access

They came up with six proposals, split into three subgroups, aimed at addressing the key barriers to...

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UK: Rare diseases economic burden ten times

The study looks at the direct, indirect and mortality-related costs of 24 rare diseases across five ...

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UK first rare disease action plan

On 28th February 2022, Health and Social Care Secretary Sajid Javid launched England’s first Rare...

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Access for rare disease treatments

Innovative therapies for rare diseases may only be available in a select number of countries in Euro...

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